The Monique Tartt Foundation, a non-profit, tax-exempt organization, was established to spread awareness about Hemophagocytic Lymphohistiocytosis (HLH) and provide information to the community regarding this rarely diagnosed Hystiocytosis disease and the importance of becoming a blood and bone marrow donor.

Our mission is to support families affected by HLH through fundraising efforts to raise much needed funds for the Cincinnati Children’s HLH Center of Excellence for effective treatment methods and ultimately a cure. The Doctors at Cincinnati Children’s Hospital treat more cases of HLH each year than any other pediatric hospital in the world.

The foundation will also support the local community and families in need with local fundraising efforts.

Our mission also supports the Palliative Care Program at Stony Brook Children’s Hospital. Pediatric palliative care supports the physical, emotional and spiritual needs of children and families facing life-limiting or life-threatening illnesses. The goal is to foster quality of life, maintain dignity, and reduce suffering in ways that are appropriate to the patient’s age, upbringing, culture and community. Palliative care is not an end-of-life service; it is a resource that can be helpful at any point in a difficult treatment process, whatever the diagnosis or prognosis.

At Stony Brook Children’s Hospital, pediatric palliative care is considered a key component of high-quality, comprehensive care — and another important way to support children and their families.